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Speech Therapy Cerebral Palsy
Gerald Said:
how rare is it to get diagnosed with dandy-walker variant as a teen/adult?We Answered:
you are very well informed about some things; that is good!From my experience, the hemorrhage that you had as a baby would not have *caused* your DWS; it is likely a result of it. Because you have less severe form (as you state) this is likely why you were never diagnosed as a baby?
Once you get your shunt, your headaches and nausea should resolve.
I am concerned that you are now pretty symptomatic and you cannot get in touch with a neurosurgeon.
when is your surgery scheduled? if you don't have any progress on this, please consider seeing another surgeon.